Sophia, The Warrior

On November 15, 2016 the world welcomed this little warrior to the world. Sophia Claire Taylor was Born at 7 lbs 1 oz at 40 weeks. What should have been a perfectly “normal” birthing experience was anything but. After getting stuck in the birth canal, and an emergency C section, Sophia spent a few weeks in the NICU at Buffalos Childrens Hospital. Sophia proved herself to be quite a fighter, & that fight continues every day! Sophia has cystic fibrosis, a lifelong disease effecting the lungs, pancreas, digestive system and more.


There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, and friends who struggle every day just to breathe.


Real progress has been made for those who have CF, but there is still no cure for this devastating disease and many lives are cut far too short. Years ago the average life expectancy was at best, 12 years old. Today it is not unusual for a CFer to live into their 30s or more. Progress is being made daily, but CF is still taking young lives far too often.

 

 

To maintain as healthy & “normal” life as possible, Sophia has to take special enzymes with any food or drink, to help her pancreas function properly. She also has a machine, a vibrating vest, to help clear her lungs. She wears the vest daily for 30 minutes, mornings & evenings. She also has a nebulizer which forces a medicine directly into her lungs, to help keep her breathing easy for her. That is 10 minutes for each treatment.


Additionally, Sophia is in a gymnastics class for 2 year olds…the activity is especially important for anyone with CF, and vital to keeping the lungs clear & functioning properly. Sophia is fighting every day to beat this hideous disease, and she is the true definition of warrior! At 2 years old, Sophia is a very happy & energetic , beautiful little girl~ waiting to teach world a thing or two.

***You can donate to the Cystic Fibrosis Foundation by booking a Mommy & Me mini session with me! 50% of your session fee will be donated to the CF Foundation to help those who are fighting just like Sophia.***

 

 

 

Sophia & Nikki