Sophia: A CF Story

Sophia, The Warrior

On November 15, 2016 the world welcomed this little warrior to the world. Sophia Claire Taylor was Born at 7 lbs 1 oz at 40 weeks. What should have been a perfectly "normal" birthing experience was anything but. After getting stuck in the birth canal, and an emergency C section, Sophia spent a few weeks in the NICU at Buffalos Childrens Hospital. Sophia proved herself to be quite a fighter, & that fight continues every day! Sophia has cystic fibrosis, a lifelong disease effecting the lungs, pancreas, digestive system and more.


There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, and friends who struggle every day just to breathe.


Real progress has been made for those who have CF, but there is still no cure for this devastating disease and many lives are cut far too short. Years ago the average life expectancy was at best, 12 years old. Today it is not unusual for a CFer to live into their 30s or more. Progress is being made daily, but CF is still taking young lives far too often.

 

 

To maintain as healthy & "normal" life as possible, Sophia has to take special enzymes with any food or drink, to help her pancreas function properly. She also has a machine, a vibrating vest, to help clear her lungs. She wears the vest daily for 30 minutes, mornings & evenings. She also has a nebulizer which forces a medicine directly into her lungs, to help keep her breathing easy for her. That is 10 minutes for each treatment.


Additionally, Sophia is in a gymnastics class for 2 year olds...the activity is especially important for anyone with CF, and vital to keeping the lungs clear & functioning properly. Sophia is fighting every day to beat this hideous disease, and she is the true definition of warrior! At 2 years old, Sophia is a very happy & energetic , beautiful little girl~ waiting to teach world a thing or two.

***You can donate to the Cystic Fibrosis Foundation by booking a Mommy & Me mini session with me! 50% of your session fee will be donated to the CF Foundation to help those who are fighting just like Sophia.***

 

 

 

Sophia & Nikki

 


Mommy & Me CF Foundations

Mommy & Me Mini Sessions

In Studio

This year, we are doing in studio mommy & me mini sessions. They are 30 minutes long and we promise to get you some beautiful photographs. May is also Cystic Fibrosis Awareness month. We have decided that we would like to donate 50% of the session fee to the Cystic Fibrosis Foundation. Our goal is to reach $500 to donate to the foundation, which means we need at least 10-11 shoots. We have also been in touch with a family with a little girl who has CF. She will be getting a discounted session, and she has allowed us to visit her home to capture a "Day in the Life" of how they handle living with CF. They have agreed to let us tell their story. I am excited, and blessed to be able to work with them and we will be posting and sharing this to spread awareness.

 

What is Cystic Fibrosis?

 

Cystic fibrosis is a progressive, genetic disease that causes persistent lung infections and limits the ability to breathe over time.

In people with CF, mutations in the cystic fibrosis transmembrane conductance regulator (CFTR) gene cause the CFTR protein to become dysfunctional. When the protein is not working correctly, it’s unable to help move chloride -- a component of salt -- to the cell surface. Without the chloride to attract water to the cell surface, the mucus in various organs becomes thick and sticky.

In the lungs, the mucus clogs the airways and traps germs, like bacteria, leading to infections, inflammation, respiratory failure, and other complications. For this reason, minimizing contact with germs is a top concern for people with CF.

If you would like to learn more about Cystic Fibrosis and CF Foundation visit: Cff.org

 

 

 

 


Mother's Day Botanical Mini Session

Nicole & Adequin: Mother's Day

Location: Buffalo Botanical Gardens

https://animoto.com/play/vlZ5TC1g1g9TsBzsEeO7bw

 

”My mother is my root, my foundation. She planted the seed that I base my life on, and that is the belief that the ability to achieve starts in your mind.” – Michael Jordan

Nicole and her son, Adequin have a very special bond. I am so happy they came out to Botanical Gardens to model for me. I had  photographed Adequin in the fall and realized then, that their bond is beautiful. I asked them to model for my Botanical Gardens Mother's Day Sessions because I knew I could capture images that would illustrate how incredible their bond is, promoting this special event.

You are not logged in!

You are not logged in!